The Paediatric Continence Forum has launched  its new Guide (September 2019) on how to commission and run integrated, nurse-led, community-based paediatric continence services. These are clinically effective, improve the lives of children and their families and generate significant cost savings for the NHS.

Bladder and bowel (continence) problems affect more than 900,000 children and young people in the UK, with a significantly negative impact on their health, wellbeing, education and emotional and psychological development. However services in this area of child health remain fragmented and inadequate, with too many children attending A&E/ admitted for acute constipation and urinary tract infections, or are referred inappropriately to already overstretched paediatric outpatient departments. This unhappy situation could be sorted out much earlier and more effectively in the community.

A central premise of the Guide is that all children from birth to 19 with continence difficulties should have access to an integrated Community Children’s Continence Service (CCCS).

This research-based Guide gives a clear description of what a “good” service looks like and how it should be run. It includes; an appropriately resourced multidisciplinary team led by a children’s continence nurse specialist and clear and effective care pathways to other key services. Also included are good referral pathways to and from universal school nurse and health visitor services at Level/Tier 1- services which provide an important role in the early identification of problems with toilet training and the onset of continence difficulties.

Read the Children’s Continence Commissioning Guide 2019.