PCF Resources

Integrated paediatric continence services Guide to significantly improve children’s lives and save NHS costs

Read the Children’s Continence Commissioning Guide 2019.

The Paediatric Continence Forum has launched  its new Guide (September 2019) on how to commission and run integrated, nurse-led, community-based paediatric continence services. These are clinically effective, improve the lives of children and their families and generate significant cost savings for the NHS.

Read and give Feedback

Here is the literature review of the Commissioning Guide. You can find the search strategy for the review here.

We welcome your feedback on the Guide and if you would like to share your own experiences of service development, do contact us by email paediatriccontinenceforum@whitehouseconsulting.co.uk.

An examination of paediatric continence services across the UK 2017

The PCF conducts a Freedom of Information survey every three years of all CCGs and Health Boards in the UK, to understand the quality of the paediatric continence services provided. The 2020 survey has been delayed due to Covid-19 and will be conducted in 2021.

An Examination of Paediatric Continence Services Across the UK 2017.

In 2017, the PCF also conducted a Freedom of Information survey on local authorities for the first time, asking 205 and receiving responses from 191. 

The Freedom of Information requests to local authorities – summary of results summary.

Continence Issues and Safeguarding – NSPCC & PCF best practice on recognise and respond to continence issues in children and young people

In February 2021, the PCF and NSPCC published new guidance to help recognise and respond to continence issues that may affect children and young people. This information includes:

  • the causes of continence issues
  • the impact these can have on a child’s wellbeing
  • what to do when challenges related to continence may indicate a safeguarding or child protection concern
  • how best to support children and young people with continence issues by developing or making changes to care plans
  • who should be providing intimate care, including information about vetting and barring checks, privacy and boundaries
  • what relevant guidance across the UK says.

You can access this guidance here.