World Bedwetting Day 2016

May 19, 2016 in News by Whitehouse

The PCF is proud to be supporting World Bedwetting Day. #WBD16 will take place this year on Tuesday 24th May, led by the International Children’s Continence Society and the European Society of Paediatric Urology, with support from Ferring Pharmaceuticals. The theme of this year’s World Bedwetting Day is ‘Time to Take Action’, as despite bedwetting – or nocturnal enuresis – being such a common condition, it is still hugely misunderstood and needs greater awareness.

Studies have suggested that 15.5% of 7 year olds, 9.5% of 9 year olds and 1-2% of teenagers experience bedwetting. Of these, up to 50% do not seek help, often believing it is a psychological or behavioural issue when it is actually caused by issues with urine production, the inability to wake to urinate or reduced bladder capacity. Untreated bedwetting can have psychological and social consequences for children, damaging their self-esteem and emotional well-being, making it crucial to raise awareness of the causes of the condition and how it can be treated.

There are several things that you can do in the run up to and on World Bedwetting Day to improve your understanding of, and raise awareness of, the condition:

  • Download and distribute a World Bedwetting Day poster, by clicking here;
  • Join World Bedwetting Day’s Thunderclap by going to its Thunderclap page. This will involve giving a personal Facebook, Twitter or Tumblr account permission to post a standardised message on your behalf on World Bedwetting Day, with the intention of spreading the message to as many people as possible;
  • Go to ERIC’s webpage on World Bedwetting Day for further information.

Global Forum on Incontinence

May 5, 2016 in News by Whitehouse

Global Forum on Incontinence. Sustainable health and social care : the role of continence care in enabling independent and dignified living

Berlin: 19-20 April 2016 Supported by SCA  

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Over 305 delegates from 30 countries met in Berlin to share new research and thinking towards improving the quality of life for older people in all areas of their lives – health care, housing, transport, accessible  shopping, entertainment and the effect of continence difficulties in all these contexts. There was an impressive range of speakers from Europe and beyond and panel discussions with experts and service users. Day 1 focussed upon incontinence and continence care and delegates were made aware of the huge risk of social  frailty ( no friends or family close by, no support), the rising population of older people and the pressure on care services globally. We heard about many new initiatives – such as a national “senior alert” register in Sweden covering nutrition, falls prevention, pressure sores and incontinence – and were made aware of the importance of sharing standards and practice across country boundaries. Day 2 included breakout sessions by country and a focus upon putting together quality and outcome frameworks for the day-to-day management of incontinence.

There were 15 invited delegates from the UK – and Penny (Dobson) was very pleased to be invited by SCA  to represent the PCF. She was able to share with delegates the work of the PCF as a lobbying organisation and the service outcomes and outcome indicators within the PCF’s Commissioning Guide (and their measurement by ChiMat).

Key Messages from the Conference

  • the importance of early assessment and prevention ( the cost of inaction)
  • within each country multidisciplinary working across organisations to ensure that limited care resources are used effectively
  • lobbying governments ( such as the UK) to include continence as a risk factor along with pressure sores, UTIs and falls ( health economy mapping)
  • better training of key staff who can provide training and support to carers
  • listening to the voice of the patient and carer
  • more clear information for the public on continence difficulties and the resources available