The Paediatric Continence Forum (PCF) is a campaigning group of health professionals, patient representatives and commercial members that engages with the Government and policymakers nationally to raise awareness of childhood bladder and bowel problems and to improve NHS services in this area of child health.
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News
PCF attends the 7th Global Forum on Incontinence (GFI)
Dr Penny Dobson MBE, chair of the Paediatric Continence Forum and PCF members Jone Rogers MBE and Davina Richardson
The Global Forum on Incontinence was held on the 17th-18th April in Rome.
Attended by over 400 delegates from 30 companies worldwide, this important Forum was sponsored by Essity Ltd., a company member of the PCF. The Conference focus was on “Outcomes in Continence Care” and we heard that despite the huge number of people with continence problems worldwide, there are still huge disparities in practice across the world. Despite this delegates responded with energy and passion to share and learn across country boundaries and PCF members were able to make a contribution on our work based upon the outcomes within the PCF Commissioning Guide – plus the mechanisms for measuring these. Key conclusions from the two days were; the importance of listening to and understanding the needs of the person with the continence problem in order to make the best assessment, improving the means to more accurately measure quality of life issues in this area – and, given universal financial constraints, the importance of using existing mechanisms ( such as in our case, the Care Quality Commission) to promote the measurement of Key Performance Indicators that were worked upon during the two days.”.
PCF attends report launch in Parliament
The PCF was pleased to attend the parliamentary launch of the report ‘It happens to me too‘ on 28th February 2018, which aims to break down the barriers faced by children and young people with bladder and bowel issues. The report featured contributions from the PCF, ERIC: The Children’s Bowel & Bladder Charity, the University of Bristol, Bladder and Bowel UK and Coloplast on the impact of continence problems on young people’s social and educational experiences, and the event was addressed by a young person and a parent with experience of these issues.
Hosted with the kind support of the Chair of the All Party Parliamentary Group on Continence Care, Rosie Cooper MP, the PCF found it useful to network with parliamentarians, clinicians and service users with a common interest in this often-neglected area of children’s health, and look forward to working with these partners in the future.
Penny Dobson, Chair, Paediatric Continence Forum; Rosie Cooper MP, Chair, Continence Care APPG; Gerald Chan, Head of Public Affairs and Communications, Coloplast; Juliette Randall, Chief Executive, ERIC