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The Paediatric Continence Forum (PCF) is a campaigning group of health professionals, patient representatives and commercial members that engages with the Government and policymakers nationally to raise awareness of childhood bladder and bowel problems and to improve NHS services in this area of child health.

The PCF is now on Twitter! Follow @PaedContForum for our thoughts and insights into policies affecting paediatric continence services.

Recent news

Public Health England week of action – 3rd November 2016

This week is Public Health England’s week of action on children and young people’s health, and today is focusing on children with complex and additional needs. To mark this, Penny has written a blog post on helping children with continence issues, which can be found here, highlighting the invaluable role school nurses play for children and young people with bladder and bowel problems.

PCF members recognised at Nursing Times Awards – 27th October 2016

The work of several members of the PCF has been recognised at the Nursing Times Awards 2016, held on 26th October in London. ERIC – The Children’s Bowel and Bladder Charity was the winner in the Continence Promotion and Care category for their ERIC Nurse Project; while June Rogers of PromoCon and Ali Wileman of the Royal College of Nursing were also runners-up in their categories. Congratulations to all from everyone at the PCF!

PCF holds parliamentary drop-in session – 5th July 2016

The PCF held a parliamentary drop-in session, kindly hosted by Neil Gray MP, for two hours on Tuesday 5th July 2016. The session was well attended, with 8 MPs coming to find out more about paediatric continence services in their local area and how they can help to improve them. We now hope to build constructive relationships with these MPs to raise the profile of paediatric continence in Parliament – and with MPs attending from England, Scotland, Wales and Northern Ireland, we can increase our focus on the devolved regions’ healthcare systems.

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PCF Chair Penny Dobson and Vice-Chair Nick Madden at the drop in event on 5th July

PCF coordinates letter to NHS England Chief Executive – 19th May 2016

The PCF has coordinated a letter to Simon Stevens, Chief Executive of NHS England, to express concerns about the poor state of NHS community-based services for children and young people with continence problems. To see the letter’s recommendations and signatories, please click the link below.

PCF Letter to Simon Stevens

The PCF subsequently received a reply to this letter from Professor Sir Bruce Keogh, National Medical Director for NHS England. Sir Bruce noted the PCF’s concerns regarding the fragmentation of paediatric continence services and the problems arising from the transfer of commissioning responsibility for school nursing to local authorities.

Sir Bruce also expressed his understanding that Wendy Nicholson, the Lead Nurse for Children, Young People and Families in Public Health England, will be preparing commissioning guidelines for children with additional needs, including continence, to ensure that services are indeed commissioned with a focus on prevention and early intervention strategies. He suggested these guidelines “will have a strong focus on value and outcomes”. Sir Bruce further thanked the PCF for its input into the Excellence in Continence Care Commissioning Framework.

The PCF will be replying to Sir Bruce in due course, and will seek to engage with the Commissioning Guide for Children with Additional Needs, being led by Wendy Nicholson.